The Project File Details
- Name: ANALYSIS OF THE KNOWLEDGE AND PERCEPTION TOWARDS DOWN SYNDROME IN ADAMAWA STATE
- Type: PDF and MS Word (DOC)
- Size: [2.10 MB]
- Length: [57] Pages
ABSTRACT
This study was undertaken in order to gain an insight on the knowledge and attitudes
of the AUN community towards Down syndrome, further research was conducted
with number [3] families in both Adamawa and Rivers States in order to assess how
parents cope with the care of a child with Down syndrome. The research also tried to
ascertain the knowledge of these parents about the disorder before and after the birth
of their children. If they had more than one child with Down syndrome was also a
factor studied in the research. All three families involved in the study had male
children with Down syndrome. Their ages ranged from 6 to 10. Questionnaires with
close ended and open ended questions were used for the study carried out in the
AUN community. All parents involved were unaware of their child’s disorder before
birth and the mothers were in denial for a while.
TABLE OF CONTENTS
BRIEF INTRODUCTION …………………………………………………………………………………. 1
AIMS AND OBJECTIVES ………………………………………………………………………………… 1
1.0 DEFINITION OF DISABILITY …………………………………………………………………… 2
1.1 TYPES OF DISABILITIES ………………………………………………………………………….. 3
1.2 WHAT IS DOWN SYNDROME? …………………………………………………………………. 4
1.3 TRAITS AND CHARACTERISTICS COMMON TO DOWN SYNDROME …. 5
1.4 CAUSES OF DOWN SYNDROME ………………………………………………………………. 6
1.5 TYPES OF DOWN SYNDROME …………………………………………………………………. 7
1.6 RISK FACTORS ………………………………………………………………………………………… 12
1.7 COMPLICATIONS ASSOCIATED WITH DOWN SYNDROME ………………. 13
1.8 DISABILITY ACT ……………………………………………………………………………………… 18
2.1 RESEARCH METHODOLOGY ………………………………………………………………… 19
2.2 RESEARCH METHOD ……………………………………………………………………………… 19
2.3 STUDY AREA ……………………………………………………………………………………………. 19
2.4 TARGETED POPULATION AND DATA COLLECTION …………………………. 20
2.5 METHOD OF DATA ANALYSIS ………………………………………………………………. 20
RESULT ………………………………………………………………………………………………………….. 21
DATA ANALYSIS …………………………………………………………………………………………… 28
DISCUSSION ………………………………………………………………………………………………….. 36
CONCLUSION ………………………………………………………………………………………………… 44
APPENDIX ……………………………………………………………………………………………………… 45
REFERENCES ………………………………………………………………………………………………… 48
CHAPTER ONE
Brief Introduction
Down syndrome is a common genetic disorder; this research is geared towards
finding out how many people in the area of focus (American University of Nigeria,
Yola) know about the disorder and how much knowledge they have and it will also
in turn attempt to raise awareness about the disorder. The paper is aimed at
increasing the understanding of Down syndrome, its causes, how it is being
diagnosed, the traits common to the disorder and its risk factors. It will also discuss
the complications associated with Down syndrome, the life expectancy of people
with Down syndrome, treatment and prevention. Coping mechanics adopted by the
parents will also be discussed.
Aims and Objectives
To know how many people are aware of Down syndrome: This aspect of the
project will explore how many people are aware of the disorder and how they gained
awareness, through the media, articles, television, school or newspapers. This will
also study the knowledge and attitudes of people who know about Down syndrome
because of a family member or relative with Down syndrome.
To figure out how parents cope with the disorder: Many parents who have
children with trisomy 21, are prone to being stressed which can affect them both
emotionally and psychologically. This study will attempt to determine how they deal
2
with stress. This will also touch on the healthcare they provide for their child and if
they have a regular checkup dates scheduled with the doctor.
To know if parents have more than one kid with Down syndrome: This will try
to understand if mothers can give birth to another child with Down syndrome after
they have already had one.
1.0 Definition of Disability
A disability is a state or condition that is perceived to be considerably dysfunctional
with regards to the typical standard of an individual or a collection of individuals.
(Definition of Disabilities) The word disability is a canopy that encompasses,
impairments, activity restraint and constraint in involvement (Disabilities, 2015).
Impairments are often translated as the inability to do things as a result of being
physically or mentally unsound. Activity restraint is the trouble a person experiences
while trying to achieve a goal or an action and constraint in involvement is the
difficulty an individual encounters in life circumstances. There are various types of
disabilities, they include mobility and physical impairments, spinal cord disability,
head injuries – brain disability, vision disability, hearing disability, cognitive or
learning disabilities, psychological disorders and invisible disabilities (Definition of
Disabilities)
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